More than 600 polyps were removed from the small intestine twice, with the largest diameter of 10 cm! The girl who has had surgery since she was three years old has finally seen hope

At 2:00 a.m. on August 23, 2020, Liu Zonglei, from Shandong Province, lies in a hotel bed near Zhejiang Provincial People’s Hospital, unable to sleep. From Shandong, Beijing, Chongqing to Hangzhou, he recalled his daughter’s road of seeking medical treatment in the past 12 years, and he was filled with emotion. < p > < p > on August 20, her daughter underwent endoscopic polypectomy in Zhejiang Provincial People’s hospital. Pan Wensheng, director of the Department of Gastroenterology, performed the operation for 12 hours. More than 200 small intestinal polyps were removed. The largest polyp diameter was 5cm. < / P > < p > “she has had surgery almost every two years since she was 3 years old.” Over the years, watching his daughter pushed into the operating room again and again, Liu Zonglei has unspeakable sadness in his heart, which has given her life, but at the same time brought her pain. < / P > < p > the daughter’s disease is called black spot polyposis syndrome, which is an autosomal dominant genetic disease, and has been listed in the state in 2018. Liu Zonglei is a native of Linyi, Shandong Province. He lives in the countryside and runs his own business. In 2005, at the age of 27, he ushered in the birth of his daughter. This is his first child, Liu Zonglei made up his mind to love her. < p > < p > in the autumn of 2008, my daughter vomited from time to time. At first, my family thought it was indigestion, but after three or five days of injection in the township hospital, it was still not good. Liu Zonglei and his daughter came to the city’s Hospital, in the Department of Gastroenterology hospitalized for 10 days, vomiting stopped, the situation temporarily improved. < p > < p > Liu Zonglei took his daughter to the hospital in the city again, but he didn’t find out what the problem was. “At that time, I was in a panic. I couldn’t find out the problem in such a large hospital. What kind of problem should it be?” At that time, the Internet was not so popular and developed. Liu Zonglei searched the Internet for her daughter’s disease and found nothing. How can this happen? The 3-year-old daughter is still unable to express clearly that her stomach ache can only be told to her parents by crying. Looking at his daughter can not eat, constantly vomiting, Liu Zonglei’s heart pulled to the top. At this time, a friend told Liu Zonglei that he could take his daughter to have a barium meal examination. Liu Zonglei took his daughter to the hospital, but after her daughter took barium meal, barium meal was stuck in the stomach. The doctor who did the examination said that he had never seen such a situation. < / P > < p > only surgery can be performed to remove barium from the body. Hearing this news, Liu Zonglei is muddled. His daughter is only 3 years old, and is about to open her belly? But the doctor told him that the child had not eaten for more than 20 days, and his vital signs were very poor. If he did not discharge barium meal in time, his life would be in danger. Looking at his daughter, Liu Zonglei nodded in tears. < / P > < p > one night before the operation, the daughter vomited part of the barium meal; the next day, the remaining barium meal was removed. During the operation, doctors were surprised to find that the small intestine of the 3-year-old girl was full of polyps! Because the local doctors have not encountered such cases, they can only remove the large polyps near the knife edge. < p > < p > after the operation, a young doctor went to Liu Zonglei in private. He saw black spots on the child’s lips. Based on what he had learned, he might have black spot polyps syndrome, which is a rare disease. After < / P > < p > < p > the pathological results of the polyps in the daughter showed that it was multiple hamartoma. In fact, whether it is the black spot polyps syndrome or multiple hamartoma that young doctors say, Liu Zonglei’s family has never heard of it. Liu Zonglei himself through the network to check the typical symptoms of black spot polyps syndrome, abdominal pain, black spots on the lips, intestinal polyps, but really and his daughter’s disease on the number. < / P > < p > in 2009, a few months after her daughter’s first suffering, she was readmitted for intussusception. It was another laparotomy. Because there were too many polyps in the small intestine, doctors could only temporarily clean up part of the polyps and excise a section of the small intestine with dense polyps. < / P > < p > after this time, Liu Zonglei learned that the polyps in his daughter’s intestines are multiple, and he will still be the president after the next cut. He is doomed to undergo many operations in his life. Therefore, he must find a better doctor and better treatment for his daughter. < p > < p > in 2010, Liu Zonglei accidentally saw CCTV’s health program and introduced an expert in Beijing. He was quite accomplished in enteroscopy minimally invasive surgery. He immediately wrote down the expert’s information, and then arranged for his wife to take his daughter to Beijing to see a doctor. < / P > < p > “after two surgeries, I can’t face my daughter any more. If I see her once, my heart will be pounded once.” Liu said. Now in retrospect, let his wife take her daughter to Beijing alone, “my behavior is not enough men, but I really didn’t have the courage at that time. I just thought that I would work hard to earn more money, so that my daughter could have a better life.” < p > < p > after arriving in Beijing, the doctor considered that although Liu Zonglei’s daughter was a little younger, she was only 5 years old, but she was well raised. Judging from her height and weight, she could bear the operation. Therefore, eight small intestinal polyps were removed under the double balloon enteroscopy, and the operation was minimally invasive. Next, in 2012, 2014 and 2016, Liu Zonglei and his family would accompany their daughter to Beijing for surgery every summer vacation, with an average of no more than 10 polyps removed each time. < / P > < p > “Why are the operations done so frequently? Polyps are still like leeks, cut long and more and more?” This is a lingering question in Liu Zonglei’s mind. For his daughter, he is willing to spend more energy and money, but it seems that the ten years of running around did not bring much change to her daughter. In the second half of 2018, a patient introduced Liu Zonglei to Zhejiang Provincial People’s hospital. In November of that year, the family sorted out a thick pile of medical records of their daughter for 10 years. With the last glimmer of hope, they came to Zhejiang Provincial People’s Hospital and found Professor Pan Wensheng, director of Gastroenterology. < / P > < p > “he didn’t turn us down. He looked at all the medical records of the child over the years and sighed This is the first time Liu Zonglei saw director Pan Wensheng. He said that he would never forget the regret in his eyes when he looked at his daughter. The operation can be done, but there are great risks. It is also a difficult problem for director Pan. Because after the polyp grows, the small intestine expands, causing the small intestine wall to be propped up as thin as paper, “a stab is broken”, which is easy to cause bleeding and perforation. After fully informing the family of the risks, the Liu family expressed their willingness to bear all the consequences. < p > < p > from the beginning of the operation, from the morning to the evening, Liu Zonglei waited outside anxiously, so anxious that he had herpes on his mouth. The first few operations, generally 4-5 hours, this time why so long? When it was dark, my daughter was finally pushed out of the operating room. When hearing that more than 400 polyps were taken out, Liu Zonglei and his wife almost did not stand firm. “Line centimeter?” If it was not for seeing polyps with his own eyes after the operation, Liu Zonglei thought the doctor was lying. You know, the diameter of the small intestine is only about 3-5cm. < p > < p > until his daughter was discharged from hospital, Liu Zonglei couldn’t believe it: if he didn’t come to Hangzhou, how many times would his daughter suffer if he didn’t come to Hangzhou to take several polyps at a time? < / P > < p > after the operation in 2018, my daughter has no abdominal pain. In the past, Liu Zonglei was always ready to receive a call from his daughter’s school teacher saying that his daughter had a stomachache and asked him to take it home to rest. It is this gratifying change that makes Liu Zonglei see hope. On August 17, 2020, he and his wife, son and daughter came to Hangzhou again to have his daughter undergo the second operation operated by director Pan. This time, more than 200 polyps were removed. Director Pan Wensheng said that because small patients are in the growth and development period, small intestinal polyps absorb more nutrients, so they grow faster. With the growth of age, it is expected that the growth rate of polyps will slow down in the future, and the interval between operations will also become longer. In the past, if there was no minimally invasive technology, only long polyps can be removed by surgery. If the polyps continue to grow, they need to keep cutting the intestine. The shorter the bowel is cut, it may also cause intestinal adhesion and intestinal obstruction. Therefore, the life span of most patients is not more than 30 years old. < / P > < p > “with enteroscopy, we strive to clear all the polyps in one operation, so as to minimize the trauma for patients, recover well, and reduce the number and size of subsequent growing polyps. In this way, patients will not fall into the vicious circle of repeated operations but their condition has not improved.” < / P > < p > for so many years, my daughter never asked her what disease she had and why she always had surgery. Sometimes in school stomachache, she will try not to tell the teacher, go home also do not say to her parents, “want to save mom and dad some money, I don’t want to go to the hospital.” < p > < p > 10 surgeries and 10 anesthetics. Liu Zonglei heard that anesthetics may affect people’s memory, and has been learning without any requirements for his daughter. But the daughter is still very competitive, since childhood learning in the upper and middle reaches of the class, this year successfully admitted to the city’s high school. < p > < p > wearing Hanfu is one of the few hobbies of her daughter. Liu Zonglei often gives her pocket money to buy something she likes, but her daughter never spends it. “Sometimes I really want to tell her, daughter, Dad hopes you are naughty, and you will make trouble and act coquettish. The more sensible she is, the more I feel I owe her. ” Don’t want to get pimples again? “Acne” you should do this